Taskforce to Improve Lung Health
ACPRC is one of the founding members of a new Taskforce for Lung Health, which brings together 25 representatives from across the lung health sector include patients, voluntary sector, professional associations, primary and secondary healthcare.
ACPRC Joins Pioneering New Taskforce to Improve Lung Health
ACPRC is one of the founding members of a new Taskforce for Lung Health, which brings together 25 representatives from across the lung health sector include patients, voluntary sector, professional associations, primary and secondary healthcare.The aim of the Taskforce is to develop a single five-year plan for improving lung health in England, endorsed by the whole respiratory community.
As a first step, the Taskforce has opened a call for evidence to identify what needs to change in how we prevent and diagnose lung disease.For more information please click here blf.org.uk/taskforce
Respiratory disease is one of the top three killers in the UK - 1 in 5 people have been diagnosed with a lung condition at some point in their lives and every year, 115,000 people die as a result of lung disease. It is estimated that the NHS spends £9.9billion each year on lung disease, including lung cancer and respiratory infections, making it the fourth most costly disease area. Unfortunately, we haven’t seen any improvements in the number of people dying from lung disease in over a decade. And whilst there are examples of effective services and good practice, it hasn’t previously been pulled together into a single plan covering the whole patient pathway, from prevention through to end of life. The Taskforce is hoping to change that. Surayya Khan, a patient representative on the Taskforce, says: “My ambition is to see a more joined-up service for patients together with better advice, support and guidance for those with lung conditions.” Further information is available at www.blf.org.uk/taskforce
Why is a Taskforce for Lung Health needed?
Lung disease is one of the top three killers - every year, 115,000 people die. Yet, despite its prevalence we haven’t seen any improvements in the number of people dying from lung disease in over 10 years, unlike other diseases such as cancer, heart disease and stroke. There are some good quality and effective services in England, but outcomes lag behind other European countries and not enough progress is being made, quickly enough. We believe more can, and should, be done to improve lung health. The Taskforce brings together the whole respiratory community to consider and agree a single five-year plan to improve patient outcomes across the whole patient pathway, from prevention through to end-of-life care.
Is the Taskforce independent of Government?
Yes. Representatives from Government departments have expressed an interest in the work of the Taskforce and are interested to see its findings, but the group is completely independent of Government.
What is the objective of the Taskforce?
The objective of the Taskforce is to develop a five-year plan for improving lung health in England, endorsed by the whole respiratory community. Within this plan there will be an agreement on specific, measurable policy and best practice recommendations for each of the five areas of the patient pathway: prevention, diagnosis, treatment and medicines, living with a lung disease and end-of-life care.
What is the key change that the Taskforce wants to see happen?
The Taskforce wants a single-plan, that brings together all recommendations for improving respiratory outcomes, across the whole patient pathway. The aim is that the plan will then be implemented by the Government and NHS England.
How is this Taskforce different from anything that has existed previously?
This Taskforce involves a wider group of stakeholders than ever previously convened to look at improving outcomes across all lung diseases. The intended plan will look at the whole patient pathway and will include the most up to date and available best practice evidence from across the UK. This has not previously been available in one place.
Who are the members of the Taskforce?
The current members are: • Association of the British Pharmaceutical Industry (ABPI) *observing member • Association of Chartered Physiotherapists in Respiratory Care • Association of Respiratory Nurse Specialists • Association for Respiratory Technology and Physiology • Asthma UK • British Geriatrics Society • British Lung Foundation • British Thoracic Society • The Chartered Society of Physiotherapy • Cystic Fibrosis Trust • Primary Care Respiratory Society • Public Health England • Respiratory Futures • Right Care • Roy Castle Lung Cancer Foundation • Royal College of Anaesthetists • Royal College of Emergency Medicine • Royal College of GPs • Royal College of Nursing • Royal College of Paediatrics and Child Health • Royal College of Physicians • Royal College of Surgeons • John Conway, patient representative • Surayya Khan, patient representative • Marion Burfield, carer representative
How are patients involved in the Taskforce?
There are two patient representatives and one carer representative on the Taskforce itself. The British Lung Foundation will also issue a call to patients to ask them to share their experience of lung disease and services through its network of Breathe Easy patient groups across the country. Other Taskforce members will be encouraged do the same through their own patient networks. Patient opinion will also be gathered through alternative channels where available and fed into the work of the Taskforce.
What is the role of the British Lung Foundation in the Taskforce?
The British Lung Foundation holds the secretariat for the Taskforce, employs a Policy and Project Manager to oversee delivery of the project, and hosts the Taskforce web pages. They also sit on the Taskforce as a member in their own right. The Taskforce is owned by the members and not the British Lung Foundation.
How is the pharmaceutical industry involved?
An Industries Forum has been established, with representatives from 11 medical companies. The Forum works alongside the Taskforce to provide a means by which industry views are represented and provide a platform to update industry partners. The Industries Forum will provide evidence and data as appropriate to the Taskforce evidence-gathering exercise.
How will the recommendations of the Taskforce be communicated to the general public?
The five-year plan will be published by Taskforce members through their own communication channels. The media will be used to draw attention to the plan amongst the general public and the need for its formal adoption by the Government and NHS England. Taskforce members have already, and will continue to carry out influencing work with the Government, NHS England and other key stakeholders throughout the development of the plan.
Article Published - 23/2/2018